Alpha-1 Foundation logo — Committed to finding a cure for Alpha-1 and to improving the...

Alpha-1 Foundation

Committed to finding a cure for Alpha-1 and to improving the lives of people affected by Alpha-1 worldwide.

Founded 1995 United States Coral Gables, United States 64 employees

General Information

Company Name Alpha-1 Foundation
Founded Year 1995
Location United States Coral Gables, United States +1
Employees 64
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About Alpha-1 Foundation

The Alpha-1 Foundation is a non-profit organization founded in 1995 in the United States with a mission to find a cure for Alpha-1 Antitrypsin Deficiency and to enhance the lives of those affected by this condition globally. It was established by three individuals diagnosed with Alpha-1, including John Walsh, Sandy Lindsey, and Susan Stanley. The Foundation has invested over $90 million in research and programs at 123 institutions across North America, Europe, the Middle East, and Australia. The organization has developed a robust infrastructure to drive research and the development of new therapies for individuals diagnosed with Alpha-1. By forming partnerships with researchers, institutions, the National Institutes of Health, Food and Drug Administration, and the pharmaceutical industry, the Foundation accelerates the advancement of improved therapies. Additionally, it engages in industry and government liaison groups, cultivating strategic alliances with domestic and international health and research organizations. To further its mission, the Alpha-1 Foundation has initiated various activities and programs, including the Alpha-1 Research Registry, the Alpha-1 DNA & Tissue Bank, the Alpha-1 Research Network, International Scientific Conferences, and the Gordon L. Snider Critical Issues Workshop Series. By leveraging its strategic approach, substantial financial investments, and collaboration with global stakeholders, the Alpha-1 Foundation has positioned itself as a pivotal force in driving impactful research and development in the field of Alpha-1 Antitrypsin Deficiency.

Taxonomy: Alpha-1 Antitrypsin Deficiency, Research Foundation, Genetic Disorder, Health Nonprofit, Medical Research, Therapeutic Development, Biomedical Collaboration, Rare Disease Advocacy, Research Infrastructure, Humanitarian Efforts

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FAQ About Alpha-1 Foundation

Committed to finding a cure for Alpha-1 and to improving the lives of people affected by Alpha-1 worldwide.
Alpha-1 Foundation was founded in 1995.
Alpha-1 Foundation is headquartered in Coral Gables, United States.
Alpha-1 Foundation has approximately 64 employees.
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